Jacob's adopted and loved very very deeply. Jacob was born premature at 26 weeks and spent the first 4 months in the hospital extremely sick. Jacob was brought home with us to spend sometime with us until his health could get better. Mommy and Daddy grew very close to Jacob and loved him so much and asked if they could adopt. We had a very long battle with courts and won. We were now officially Jacob's MOMMY and DADDY.

March 2010 we found out that Jacob had Cystic Fibrosis. It was a very HUGE surprise and did not know how to cope with it at first. It was a huge relief knowing why Jacob was very ill and always in the hospital but then again we were scared to death. We are all getting better with it and learning how to cope with CF. We will never deal with it and that's because we will never stop fighting till we have a cure. Jacob's a very strong little boy and made it through everything else that has been brought his way and will continue to fight.

Jacob will FIGHT
Jacob will WIN
Jacob will SURVIVE

Jacob has taught our family "If you have LOVE than you have EVERYTHING"

LOVE, HAPPINESS, and GOD makes everything all better.

Friday, June 18, 2010

Showing Concern.......

1 phone call can make a difference..that's all I ever asked for

Yes, here it was 3:47 on a Friday afternoon and still no call back from Jacob's OLD Doctor. Yep that's right I said OLD Doctor. I have made a choice to switch Doctors and I really think that I'm happy with my decision. I'm laying in bed this morning listening to my baby cough so much this morning and the first words out of his mouth is "Mommy, why won't my cough go away?" I sit there and give him a hug and say "Hunny, I'm so sorry and we are all trying to make it better for you and all the other wonderful people in the world." I wish that part was correct - the part where I say we are ALL trying - In reality I feel like there are some Doctors or shall I say staff that's not trying as hard. Jacob's Doctor still not called us back and to me that shows you just don't care. I called them Thursday morning and left a message explaining to them that he's been coughing more than normal and I just got over Chronic Bronchitis and I was worried he may have picked something up if they could please call me back right away. I left another message yesterday  yesterday afternoon cause I still had not heard from them. No call back yesterday or today - not even so much as a call saying "Sorry, we don't care enough to do our jobs" This is not the first time that this center has ignored my phone calls before and I'm sure it would not have been the last. I as a Mother made sure that it would be the last time they would do that to my son.

I found out last night from a wonderful Mother how I could find Accredited Cystic Fibrosis Clinics in our area and found that there was one located in Orlando so I gave them a call and yep 30 minutes later I received a phone call back. I sat there on the phone with the Nurse for 30 minutes and had more questions answered from her in 30 minutes then I have received in 3 months from Jacob's Doctor. I really liked what I was hearing and decided to change his Doctor to them. The Nurse told me that she would have someone call me back to get all our information and schedule the appt. She said the earliest she could get us in would be Wednesday but if I felt he should be seen earlier or if things got worse to call his Primary Doctor or take him to the ER. Within 20 minutes after speaking to the Nurse the registration lady called me back - got all my information and confirmed the appt.

So that's it - we are changing doctors and I will be calling to cancel his 3 month check up that's scheduled for Wednesday. When those nice little office staff people can ask me why we are switching I'm going to tell them in a very nice way "I love my son and he deserves EXCELLENT care and that's something you could not offer my son at this time"

1 comment:

  1. Great job Kim! I am sooo happy that Jacob will be getting the care he deserves and then some!